Great to see this group forming

I am very interested in this effort and look forward to interacting with others who have similar interests.  We have an existent licensing agreement between the University of Michigan and the MiHIN PatGen group, and we look forward to open learning/exchange.

Happy Halloween -

Patricia Abbott, PhD

University of MIchigan

Image result for halloween pictures funny

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Comments

Randomizing existing VistA data

Larry Faraci's picture

In answer to the gentleman who asked about just randomizing VistA patient data.

There are many interdependencies (pointers) between the VistA FIleMan Files and those need to be maintained else patient data will be invalid.

I am currently involved with developing a solution to De-Identify VistA environements. This requires De-Identifying elements of PII as defined by HIPAA Sxection 164.514:

(A) Names;

(B) All geographic subdivisions smaller than a State, including street address, city, county, precinct, zip code, and their equivalent geocodes, except for the initial three digits of a zip code if, according to the current publicly available data from the Bureau of the Census:

(1) The geographic unit formed by combining all zip codes with the same three initial digits contains more than 20,000 people; and

(2) The initial three digits of a zip code for all such geographic units containing 20,000 or fewer people is changed to 000.

(C) All elements of dates (except year) for dates directly related to an individual, including birth date, admission date, discharge date, date of death; and all ages over 89 and all elements of dates (including year) indicative of such age, except that such ages and elements may be aggregated into a single category of age 90 or older;

(D) Telephone numbers;

(E) Fax numbers;

(F) Electronic mail addresses;

(G) Social security numbers;

(H) Medical record numbers;

(I) Health plan beneficiary numbers;

(J) Account numbers;

(K) Certificate/license numbers;

(L) Vehicle identifiers and serial numbers, including license plate numbers;

(M) Device identifiers and serial numbers;

(N) Web Universal Resource Locators  (URLs);

(O) Internet Protocol (IP) address numbers;

(P) Biometric identifiers, including finger and voice prints;

(Q) Full face photographic images and any comparable images; and

(R) Any other unique identifying number, characteristic, or code;

If you wish further discussion please contact me at:

Larry Faraci

(301) 793-8135

larry.faraci@va.gov / lfaraci@plan-sys.com

 

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Great to see this group forming

Sam Habiel's picture

I see articles on twitter almost once a week about this. This is an old one, from 2009; but it lays out the case well.

Here's one from earlier this year:

https://www.forbes.com/sites/realspin/2017/02/15/the-privacy-delusions-of-genetic-testing/#33cc15fc1bba




--Sam Habiel, Pharm.D.

Technical Fellow

Open Source Electronic Health Records Alliance (OSEHRA)

Cell: 206-353-1681



On Thu, Nov 16, 2017 at 4:59 PM, Larry Faraci <ljfaraci@gmail.com> wrote:

In answer to the gentleman who asked about just randomizing VistA patient data.

There are many interdependencies (pointers) between the VistA FIleMan Files and those need to be maintained else patient data will be invalid.

I am currently involved with developing a solution to De-Identify VistA environements. This requires De-Identifying elements of PII as defined by HIPAA Sxection 164.514:

(A) Names;

(B) All geographic subdivisions smaller than a State, including street address, city, county, precinct, zip code, and their equivalent geocodes, except for the initial three digits of a zip code if, according to the current publicly available data from the Bureau of the Census:

(1) The geographic unit formed by combining all zip codes with the same three initial digits contains more than 20,000 people; and

(2) The initial three digits of a zip code for all such geographic units containing 20,000 or fewer people is changed to 000.

(C) All elements of dates (except year) for dates directly related to an individual, including birth date, admission date, discharge date, date of death; and all ages over 89 and all elements of dates (including year) indicative of such age, except that such ages and elements may be aggregated into a single category of age 90 or older;

(D) Telephone numbers;

(E) Fax numbers;

(F) Electronic mail addresses;

(G) Social security numbers;

(H) Medical record numbers;

(I) Health plan beneficiary numbers;

(J) Account numbers;

(K) Certificate/license numbers;

(L) Vehicle identifiers and serial numbers, including license plate numbers;

(M) Device identifiers and serial numbers;

(N) Web Universal Resource Locators  (URLs);

(O) Internet Protocol (IP) address numbers;

(P) Biometric identifiers, including finger and voice prints;

(Q) Full face photographic images and any comparable images; and

(R) Any other unique identifying number, characteristic, or code;

If you wish further discussion please contact me at:

Larry Faraci

(301) 793-8135

larry.faraci@va.gov / lfaraci@plan-sys.com


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